Founded en 1992, the European Leukodystrophy Association is an associatio recognised as being a public utility under the terms of the 1901 French law.
It's an association of motivated and informed parents and patients who share responsabilities within ELA and have united their efforts in order to fight leukodystrophies and myelin deseases by establishing and respecting the following clear objectives :
- to help and support families affected by leukodystophy
- to stimulate the development of research thanks to ELA foundation created in 2005
- to raise public awareness
- to develop its work at international level.
Caroline is an honor ambassador of ELA since 2006
